Supporting people with LD who are affected by a relative or friend with cancer

The aim of this study was to explore the experiences of adults with learning disabilities who have a relative or friend with cancer. Click here to see further details of the study.

Parents of disabled children - National Forum

Parents of disabled children was set up by parents of disabled children and is run by them. It is a national forum and contains lots of useful information and the opprtunity to talk to other parents from all over the country.

Click here to access the forum

Free resources from Change

Visit the Change website ( people with learning difficulties working for equal rights) here for resources which can be downloaded free of charge.

These include issues such as safeguarding, rights in custody, transition and cancer information.

Good Meeting Guide

As part of our work with the skill building sessions we devised a Good Meeting Guide for parents/carers to use when attending any meetings they may have regarding their child.

Click here to download the guide, it can be printed off and used.

Involve me project

The Involve Me resource aims to increase the involvement of people with profound and multiple learning disabilities (PMLD) in decision making and consultation. The resource is the result of a three year project, supported by the Renton Foundation and run by Mencap in partnership with the British Institute of Learning Disabilities (BILD).

Click here to learn more about the project.

Free dvd resource - disability & sexuality

A new DVD training resource designed to support all professionals who care for young people with palliative care needs or disabled young people. The resource takes the viewer on an honest and candid journey as young people and carers talk about the complex topic of sexuality and disability

For further information about the dvd and for details on how to order one please click here.

Siblings

Sibs is a uk charity for people who are growing up or have grown up with a brother or sister with any disability, long term chronic illness or life limiting condition.

They recognise the needs that the siblings have and aim to offer support and information for siblings and parents. They offer free resources for parents, email tips, phone support for parents and more.

Their webiste address is:  http://www.sibs.org.uk/

Accessible document - What is safeguarding?

People at CHANGE were very worried about the events which happened at Winterbourne and were concerned that vulnerable adults are not being empowered to know when they are being abused and what to do about it.

CHANGE have made an accessible document called 'What is safeguarding?' to support people to understand how they should be treated.

It is free to download from their website. Click here to access it.

Postural Care Basic Information Sheet

Click here for information sheet on Postural care and protecting body shape.

Hip Replacement - Accessible Information Pack

Easy Read Hip Replacement info thanks to NHS Fife - click here for more info.

Personal Health Budgets

A virtual space where people with a personal health budget, their families and carers and those who are interested can talk about their experiences

Click here for further details

TACPAC - Communication through touch & music

Tacpac is an activity resource for helping people with sensory or neurological impairment, developmental delay, profound and multiple learning difficulties, tactile defensiveness, and limited or pre-verbal communication.

For more information click here

Disabled and Reduced Mobility Airport Guide which covers multiple accessibility issues at the Airport

This guide has been created to help relieve some of the stress and worry which is very common among disabled persons when travelling through unfamiliar environments such as an Airport.

Included in the guide is information such as Travelling with Visual Impairments, Breathing Problems, Flying with Guide Dogs, Travelling with Autism, Wheelchair access, Help at the car park and much more.

Click here for more info

Free easy read accesible book about cancer for people with learning disabilities and their carers

The team at the cancer project at CHANGE have produced a series of easy read books on CANCER especially for people with learning disabilities. There publications are free but limited so do not delay. Click here for more information and to order the booklets.

Family Planning Association information for young people with learning disabilities

The Family Planning Association have produced a variety of resource material aimed towards young people with learning disabilities. The material covers a range of topics such as growing up, sex and contraception and more.

For more information and to see the range of publications click here

Information on oral hygiene for support staff

1. The good teeth guide for parents and carers of children with extra needs. Click here to view
2. Leaflet 1: General advice. Click here to view
3. Leaflet 2: Individuals with swallowing problems. Click here to view
4. Leaflet 3: Individuals who have few teeth or who wear dentures. Click here to view

Simple games designed for touch screen computers. Free to play

Click here for link

Toy Libraries

Toy libraries provide toys and play opportunities for children with special needs and also information and support for parents, carers and their siblings.
To find your nearest toy library, contact the National Association of Toy and Leisure Library's Helpline Services:
tel: 020 7255 4616 or email: helpline@playmatters.co.uk

Social Moral Awareness Test

A simple to use test of social-moral awareness in people with learning disabilities.

For more info click here

Children’s Patient Passport

Click here to see an example of a children's passport

Patient Passport

The Patient Passport provides crucial information about a person’s everyday needs and wishes. It also specifies the person’s primary diagnosis, if known, for example: Learning disability, dementia or other condition

We have evolved the patient passport to include end of life decisions and rather than the passport being just for people with learning disability this is now one document for anyone who may be vulnerable because of communication difficulties, ie people with dementia, stroke, long term conditions end of life needs

Patient Passport : click here
Guidance Notes: click here

Independant Bus Travel

BusConfidence.com is a website especially designed to help young people with Special educational needs who may be travelling to school on their own for the first time.

This website has a wealth of information including interviews with teacher and travel trainers, stories of young people who have already become independant travellers and resources which are available to be downloaded for free

Click here for more information

Scope Communication Passport

Scope provide a handy guide/template for creating your own communication passport for your young person. It is a practical guide to help people communicate with a non verbal child. It provides useful personal information about the young person and can be made creatively using words/pictures or both.

For the guide please click here